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Rock from the Heart - Empowering Communities
Our organization is dedicated to empowering communities by providing resources, education, and support to those in need. We believe that everyone deserves access to a better life, and we work tirelessly to make that a reality. Through our programs and partnerships, we strive to create a more equitable and just society for all. Join us in our mission to make a difference!
About our Mission
Learn about the Rock from the Heart Mission and find links to aortic disease resources and information HERE.
Sponsorship Opportunites
Teaming with Rock from the Heart offers your organization tremendous marketing opportunities. Click here to learn more.
Video
Have you visited our YouTube channel? Click here to view replays from past symposiums, concert clips, and music videos.
In the Media
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Partner Resources
Rock from the Heart in the news
Visit this page to see what we have been up to.
Partner Resources
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Partner Resources
Collaborating with organizations that align with our vision allows us to maximize the sharing of resources, knowledge and support.
Aortic Health Education and Awareness
Who we are
We are a virtual family of educators, survivors, and music fans working to create an inclusive and engaged community of support, encouragement, and awareness.
Our Story
Read more survivor stories HERE
After a diagnosis of aortic valve disease and an aortic aneurysm, Pete and Amy Johnson learned firsthand the lack of information and resources available.
Rock from the Heart was born from a vision of hope and determination as Pete lay in his hospital bed prior to surgery.
Faced with a life-altering aortic disease diagnosis, he and his wife, Amy, found strength in their love for each other and their shared passion for music. Amid the uncertainty and fear, the couple envisioned a way to bring awareness to aortic health and support others on similar journeys.
This vision grew into Rock from the Heart, a nonprofit organization that combines the power of music with a mission to educate and inspire. Today, Rock from the Heart hosts events that raise awareness about heart disease, provide resources for patients and families, and culminates in an annual benefit concert where they rock from the heart.
Their story shows how a spark of hope in the darkest of times can ignite a movement that touches countless lives.
"Knowledge is power when it comes to your health, and aortic conditions are not exception. We want to share the details of our journey so people aren't left searching for answers." --Pete and Amy Johnson, Rock from the Heart founders
Pete and Amy Johnson
Rock from the Heart Founders
Aortic Disease information and resources
Our Mission
Rock from the Heart's mission is to proactively educate people about aortic and heart valve disease, bridge the gap between impacted families and the support they need, connect those diagnosed with vital resources, and inspire all through the healing power of music.
Who We Are
Rock from the Heart is a community of survivors, caregivers, educators, and music fans united by a shared mission: to raise awareness and provide support around aortic and heart valve disease. We believe in creating an inclusive space where people can connect, learn, and lift each other up.
Why It Matters
Aortic conditions—including valve disease, aneurysms, and dissections—are often silent and strike without warning. Early detection saves lives, but patients also need support, education, and resources to navigate a complex healthcare system. That’s where Rock from the Heart steps in.
What We Do
Support & Education: We provide resources, patient programs, and educational opportunities for individuals and families. Knowledge is power, and we empower people to make informed decisions about their health.
Inspiration Through Music: Our benefit concerts use the universal language of music to uplift spirits, celebrate survivorship, and connect people with others who share their journey.
The Issue
- In 2019, nearly 9,904 deaths in the U.S. were attributed to aortic aneurysms and dissections. CDC
- Aortic disease (aneurysms, dissections, etc.) can account for a significant portion of sudden, unexplained deaths — some reports suggest it may underlie ~10% of sudden deaths in certain populations. AHA Journals
- Thoracic aortic aneurysms are hard to track precisely because many are asymptomatic; estimates suggest an incidence of 5 to 10 cases per million people per year for acute dissections in developed countries. Wikipedia+1
- Heart valve disease affects over 5 million Americans and is responsible for around 25,000 deaths per year in the U.S. CDC+1
- Public awareness is low: about 75% of U.S. adults know little to nothing about heart valve disease. CDC+1
Knowledge is powerful when it comes to your health.
- Rock from the Heart supports families from diagnosis through recovery by connecting them with trusted resources and often hard-to-find information.
- When patients and their loved ones understand the fundamentals of aortic disease, they’re better equipped to advocate for themselves and engage meaningfully with their medical teams.
Awareness saves lives. Rock from the Heart produces events—concerts, seminars, and workshops—to shine a spotlight on aortic diseases and heart valve conditions. Through music and education, we:
- Communicate new research and clinical information to the public
- Raise awareness of warning signs, especially in underserved or under-informed populations
- Work to reduce barriers to diagnosis, treatment, and follow-up care
- Serve as a voice for patients and families, advocating for timely access to proper care, better outcomes, and improved quality of life
Heart Valve Disease Awareness Day - February 22nd
As many as 11 million Americans have heart valve disease (HVD)—a potentially disabling and deadly disease—yet 3 out of 4 Americans know little to nothing about HVD.
Join the movement to raise awareness about heart valve disease and protect patient lives.
Learn more about the campaign HERE
Global Heart Hub
Global Heart Hub is the first global non-profit umbrella organisation of patient organisations and patient advocates to provide a voice for those living with or affected by cardiovascular disease.
Learn more about the campaign HERE
2022 ACC/AHA Guideline for the Diagnosis and Management of Aortic Disease
The 2022 American College of Cardiology/American Heart Association Guideline for the Diagnosis and Management of Aortic Disease (ACC/AHA Aortic Disease Guideline) provides guidance for clinicians on the “diagnosis, genetic evaluation and family screening, medical therapy, endovascular and surgical treatment, and long-term surveillance of patients with aortic disease.”
American Heart Association
In an effort to improve the timely diagnosis and treatment of aortic stenosis, the American Heart Association, has launched its Target: Aortic Stenosis initiative, a program aimed to improve adherence to the valvular heart disease guidelines and improve outcomes along the patient journey
Rare Patient Voice
Rare Patient Voice is built on the core values of being a good resource for our patients, a good partner to our clients, a good employer for our staff, and a good citizen in our community. We are always listening to three key voices -- our patients, clients and employees. The company models these values through: Integrity – We know and do what is right for our patients, clients and employees.
Respect – We treat others the way we want to be treated. Innovation – We are open to new ideas and ways of doing things that improve the experience for our patients, clients and employees.
Improvement – We will make mistakes - but we will acknowledge them, fix them, and learn from them. Responsibility – We embrace opportunities to contribute and take ownership of our work.
Learn more HERE